PAC is a nationwide network of expert patient advocates, advisors, and caregivers with a diverse background in patient engagement and a strong understanding of patient preferences. This patient-led council is dedicated to improving the efficiency of clinical trials by embedding the patient voice and perspective into every facet of clinical trials so innovative, life-saving medications can get faster approval.
The PCN included patients and caregivers with diverse experiences that lend themselves to providing constructive feedback and the insights on Medable patient-facing initiatives on a project to project basis.
"As a cancer survivor and patient advocate, I represent the collective views of survivors, patients and family members effected by cancer. As a PAC member, I leverage that experience to ensure research and clinical trials are patient-centered, relevant and reflect the patient's and caregiver's needs and concerns."
Joan Venticinque, PAC Member
Richie Kahn, PAC Member
Paul Kidwell is a Boston-based, independent public relations/patient advocacy consultant providing media relations and patient engagement support for biopharmaceutical companies, and a rare disease podcaster. He has also been a Parkinson’s caregiver since 2007.
"Passionate about utilizing my personal experiences as both a patient and advocate to make positive changes and impact in the rare disease community".
Sumaira Ahmed PAC Member
"The Medable PAC provides a unique opportunity for key stakeholders to work together, and contribute their insights and experience to accelerate innovation. By integrating the patient voice within Medable’s digital and hybrid solutions, we offer a human-focused experience."
Jena Daniels, Medable PAC Advisor
"As the mother of two young adults with Duchenne Muscular Dystrophy and a patient advocate, I am excited to chair Medable’s PAC. By including the patient voice, we help to create a better patient experience and increase engagement with difficult-to-populate rare disease trials."
Jennifer McNary, PAC Chair
“Firstly, I am living with cancer with an artificial heart valve. Secondly, I am a physician-researcher and clinical trialist by profession. My goal in life is to elevate the intersectionality between my lived experiences as a patient and research know-how as a clinician. I joined Medable PAC to bring both perspectives."
Dr. Gaurav Dave, PAC Member