Jennifer McNary

PAC Chair

Jenn McNary is a trusted voice in the rare disease community, as a mother, public speaker, and fierce advocate. Jenn has unique experience in the drug development field, as a parent of children enrolled in the clinical trials, an advocate engaging with the regulators, and as a consultant helping to develop programming for patients. Currently, Jenn is consulting in the biotechnology space with expertise in caregiver/patient engagement, including bringing the patient voice to drug development and solving barriers to access. Her other activities include serving as the Founder of One Rare, a non-profit formed to meet the needs of young adults with rare and chronic conditions, and raising her four children in Massachusetts.